Thursday, May 30, 2013

Kenan, Krabbe Disease and How You Can Help

There are 7,000 Rare Diseases. 

1 in 10 people are affected. 

50% of those are children. 

30% of those children won't make it to the age of five. 

The number of children who will have Krabbe Disease: 

1 in 150,000
Tamsen and Kenan (in his earlier stages of Krabbe Disease)
If you've been following us this far, you realize that Kenan's long-term prognosis 
is not a long, or easy, life.

So how can you help?

Visit & Share:



Get Involved:


Donate to the family via check:
Make check payable to:
Natasha Spencer:

Mail to:Kisses For Kenan

318 Half Day Road, #280
Buffalo Grove, IL 60089-6547

 Pass it On
Raise Awareness

Thank you for your heartfelt dedication to our month long focus on Kenan and Krabbe Disease


  1. Thank you so much Amber for getting this information out there!! I know that Natasha and
    Dann appreciate do we.. some of the other members of Kenan's family....

  2. Anything to help. Not a day that goes by I don’t think about you and your precious family<3


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